Marfan Syndrome is a heritable condition that affects the connective tissue. The primary purpose of connective tissue is to hold the body together and provide a framework for growth and development. In the Marfan syndrome, the connective tissue is defective and does not act as it should. Because connective tissue is found throughout the body, the Marfan syndrome can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin and lungs.
Marfan Syndrome affects men, women and children, and has been found among people of all races and ethnic backgrounds. It is estimated that at least 1 in 5,000 people in the United States have the disorder.
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In October, 2007, my 15 year old grandson was diagnosed with Marfan Syndrome. Until that time, I had never heard of the disease. Yet, 1 in 5,000 children, teenagers, and adults have this disorder!
In an effort to raise awareness, educate the public, and help raise funds for research, we will donate a portion of the purchase price of all items sold in this department to the National Marfan Foundation.
To learn more about Marfan Syndrome, please visit the link above.
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Marfan Syndrome Awareness
